Coping and support

Whether you or your child has been diagnosed with Eisenmenger syndrome, it's natural to worry, even after treatment. Although treatments can help your symptoms and improve your prognosis, you may feel stressed or nervous about your condition.

Here are a few things to keep in mind to help you cope with an Eisenmenger syndrome diagnosis and treatment:

• Emotional difficulties. Being diagnosed with Eisenmenger syndrome is life-changing. You may need to alter your plans to have a family, and you may find yourself nervous that your condition will worsen.

  If your child has been diagnosed with Eisenmenger syndrome, he or she may feel insecure and may have emotional difficulties as he or she reaches school age. Talk to your doctor or your child's doctor about ways you can cope with these problems, which may include support groups, or a visit to a therapist or psychologist.

• Developmental difficulties for children. Because some children who have congenital heart defects and Eisenmenger syndrome may have had a long recovery time from surgeries or procedures, they may developmentally lag behind other children their age. Some children's difficulties may last into their school years, and they may have difficulties learning to read or write, as well. Talk to your child's doctor about ways to help your child through his or her developmental difficulties.
• Support groups. A serious medical problem for you or your child isn't easy and, depending on the severity of your condition, may be very difficult and frightening. You may find that talking with others who've been through the same situation brings you comfort and encouragement. Ask your doctor or your child's doctor if there are any local support groups.